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Paige and Ryan Getzlaf, captain of the Anaheim Ducks and a member of the 2007 Stanley Cup champions, hosted the 10th annual “Getzlaf Golf Shootout” on Saturday, September 11, at Monarch Beach Golf Links in Dana Point. The event helped raise more than $800,000 in support of CureDuchenne, a global nonprofit focused on finding and funding a cure for Duchenne muscular dystrophy.
The charity golf event brought together local athletes, celebrities and community leaders to raise funds for CureDuchenne’s community programs and investments into life-saving Duchenne muscular dystrophy research to improve the lives of the Duchenne boys, young men and their families. The event included a golf tournament, awards reception and dinner.
Duchenne muscular dystrophy affects approximately 1 in 3,500 male births worldwide; boys are usually diagnosed around 5 years of age, lose the ability to walk by their mid-teens and most boys with Duchenne don’t survive past their mid-20s. It is 100% fatal. Nearly 15,000 boys are living with the disease in the United States alone and more than 300,000 worldwide
CureDuchenne is recognized as a global leader in research, patient care, and innovation for improving and extending the lives of those with Duchenne muscular dystrophy. As the leading genetic killer of young boys, Duchenne affects more than 300,000 individuals living today. CureDuchenne is an organization dedicated to finding and funding a cure for Duchenne by breaking the traditional charitable mold through an innovative venture philanthropy model that funds groundbreaking research, early diagnosis, and community education.
For more information on how to help raise awareness and funds needed for research, please visit cureduchenne.org.